About Us

The Neurofibromatosis Tumor Foundation is a nonprofit organization founded in 1979 to provide information and support to people with neurofibromatosis (NF), their families, and anyone interested in the disorder.

The mission of the NF Tumor Foundation is to provide information, education, support, and awareness about Neurofibromatosis. Our goals are simple: we want EVERYONE to know about NF and we want to make sure that no one has to deal with this disorder alone if they don’t wish to do so.

Our service area started out encompassing Maryland, District of Columbia, Virginia, West Virginia, Delaware, Pennsylvania, New Jersey, and North Carolina. We have expanded our reach to fulfill the NF support, awareness and education needs of the international community, and we have a dedicated partnership with “WatisNF” in the Netherlands.

Recently we have made even bigger strides in extending our reach, by making further partnerships in Europe and Africa!