Update on NF Drug


The FDA has only approved the NF-1 drug for children so far. NIH is conducting trials for adults. Further informationwill be posted.

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Next Zoom Meeting


We will be having our next Zoom Meeting in a couple of week. What topics do you want covered?

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NF Awareness Month


Just a reminder that May is NF Awareness Month. Please do what you can to bring awareness to NF.

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Corona Virus


Folks with NF are at no greater risk for either getting COVID-19 or becoming severely ill as a result of it than anyone else.  NF in and of itself is not a risk factor.  That said,…

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Corona Virus


The Corona Virus (COVID-19} has changed all our lives. At the current time we know of no more risks specific to the NF Community than the general population. Please take the precautions you feel are…

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Possible Meeting


There has been some interest in having a meeting, Who would be interested in having one?

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40th Anniversary


In honor of our 40th Anniversary, our organization has made a donations to Camp New Friends and Johns Hopkins.

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Josh Humphries


Heard from long time member, Josh Humphries. He will be going into UVA for a check-up. Lets wish him well.

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This Past Weekend


Hi All, This past weekend NF Tumor Foundation/ NF Mid-Atlantic Board Member Bev Dobson attended the NF-1 Families Session of the 6th International RASopathies Symposium. It was hosted by the NF Network. Dr. Bruce Korf,…

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Very Good Read


https://www.today.com/parents/woman-serves-surrogate-her-twin-sister-who-can-t-be-t151711

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