Paul Mendelsohn


Paul D. Mendelsohn, long time board member and volunteer of this organization under most of its names passed away last month, His memorial service was yesterday on Zoom. It would have  been his birthday. To…

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Annual Appeal


November, 2020 Dear Friends, What a year! Like most other non- profits, NFMA/NFTF had to put most of our plans on hold. Of course, we are still answering questions and giving out information. We still…

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www.mskcc.org/cancer-cares/neurofibromatosis/neurofibromatosis-doctors-surgeons-other-specialists

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https://www.gamesradar.com/gillian-anderson-stars-in-her-own-comic-book-to-raise-money-for-a-good-cause/


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Update On Below Post


Hi All The post that I just made wont work unless you have a subscription to the Washington Post. It is a reaaly great article. If you wnt to read it you can look the…

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Great Article. A Must Read


www. washingtonpost.com/local/what-will-come-of Autumn-a-girl-a-disfiguring-tumor-and-a-clinical-trial-that-offers-hope-2020/09/18dcdf0d4fa01-11ea-89e3-4b9efa36dc64_story.html  

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Update on Camp New Friends 2020


Hi All, Last week we received a letter thanking us for our donation to Camp New Friends – Brainy Camps. With the letter was a letter, which were all held virtually. Here are some highlights…

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New Children’s NF Clinic


https://www.clevelandjewishnews.com/news/briefs/akron-children-s-hospital-starts-multi-disciplinary-clinic-for-neurofibromatosis/article_1e82230_e6da-11ea-b613-1fdd263fcc36.html

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Interesting Article


  https://www.labroots.com/trending/cardiology/18205/neurofibromatosis-affects-heart-health

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Update on NF Drug


The FDA has only approved the NF-1 drug for children so far. NIH is conducting trials for adults. Further informationwill be posted.

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