Annual Appeal


November, 2020 Dear Friends, What a year! Like most other non- profits, NFMA/NFTF had to put most of our plans on hold. Of course, we are still answering questions and giving out information. We still…

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www.mskcc.org/cancer-cares/neurofibromatosis/neurofibromatosis-doctors-surgeons-other-specialists

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https://www.gamesradar.com/gillian-anderson-stars-in-her-own-comic-book-to-raise-money-for-a-good-cause/


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Update On Below Post


Hi All The post that I just made wont work unless you have a subscription to the Washington Post. It is a reaaly great article. If you wnt to read it you can look the…

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Great Article. A Must Read


www. washingtonpost.com/local/what-will-come-of Autumn-a-girl-a-disfiguring-tumor-and-a-clinical-trial-that-offers-hope-2020/09/18dcdf0d4fa01-11ea-89e3-4b9efa36dc64_story.html  

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Update on Camp New Friends 2020


Hi All, Last week we received a letter thanking us for our donation to Camp New Friends – Brainy Camps. With the letter was a letter, which were all held virtually. Here are some highlights…

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New Children’s NF Clinic


https://www.clevelandjewishnews.com/news/briefs/akron-children-s-hospital-starts-multi-disciplinary-clinic-for-neurofibromatosis/article_1e82230_e6da-11ea-b613-1fdd263fcc36.html

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Interesting Article


  https://www.labroots.com/trending/cardiology/18205/neurofibromatosis-affects-heart-health

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Update on NF Drug


The FDA has only approved the NF-1 drug for children so far. NIH is conducting trials for adults. Further informationwill be posted.

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Next Zoom Meeting


We will be having our next Zoom Meeting in a couple of week. What topics do you want covered?

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