Possible Meeting
There has been some interest in having a meeting, Who would be interested in having one?
Category: In The News
40th Anniversary
In honor of our 40th Anniversary, our organization has made a donations to Camp New Friends and Johns Hopkins.
Josh Humphries
Heard from long time member, Josh Humphries. He will be going into UVA for a check-up. Lets wish him well.
This Past Weekend
Hi All, This past weekend NF Tumor Foundation/ NF Mid-Atlantic Board Member Bev Dobson attended the NF-1 Families Session of the 6th International RASopathies Symposium. It was hosted by the NF Network. Dr. Bruce Korf,…
Very Good Read
https://www.today.com/parents/woman-serves-surrogate-her-twin-sister-who-can-t-be-t151711
NF Day at Hopkins
It has come to our attention that we missed NF Day at Johns Hopkins in the Spring. We were involved in another project at the time and don’t remember being notified. We expect to make…
NF Tumor Foundation Walk/Run
Hi Everyone! Don’t know if you know it or not but it is our 40th Anniversary. We have had some technical difficulties. So I haven’t been able to update as much as I would like….
TWC News – Season of Giving Back 2016
Executive Director Rick Prommel recently discussed Neurofibromatosis as part of the Season of Giving Back on TWC News NC with Caroline Blair. Click here or the image below to see the article online and watch the…
MyRDC Community Matters 2016
Watch Executive Director Rick Prommel and volunteer Janelle Bell in their interview with Bill LuMaye on MyRDC28 and The CW22. Executive Director Rick Prommel explains Neurofibromatosis to host Bill LuMaye Volunteer Janelle Bell and Executive Director…