Josh Humphries

Heard from long time member, Josh Humphries. He will be going into UVA for a check-up. Lets wish him well.

This Past Weekend

Hi All,

This past weekend NF Tumor Foundation/ NF Mid-Atlantic Board Member Bev Dobson attended the NF-1 Families Session of the 6th International RASopathies Symposium. It was hosted by the NF Network. Dr. Bruce Korf, MD Ph.D was one of the speakers.

Questions were answered  about a host of NF-1 problems and research was discussed.

Also attending were former NF Mid-Atlantic Board Officers Mary Ann Wilson, Brenda Duffy, and Paul Mendelsohn.

 

NF Day at Hopkins

It has come to our attention that we missed NF Day at Johns Hopkins in the Spring. We were involved in another project at the time and don’t remember being notified. We expect to make any further events.

NF Tumor Foundation Walk/Run

Hi Everyone!

Don’t know if you know it or not but it is our 40th Anniversary.

We have had some technical difficulties. So I haven’t been able to update as much as I would like. But they are all taken care of.

We are having a Do-It-Yourself Walk/Run through the end of Summer. A Do-It-Yourself Walk/Run, you set the course, do it with friends, or by yourself and send in a donation.

Founder Mary Ann Wilson wishes us Good Luck with our 40th Anniversary.

Big Thanks to Aaron Jumani for all his help with our recent technical difficulties.

And we send get well wishes to Barbra Levin who is finally out of the hospital and recuperating at home from her broken leg.

MyRDC Community Matters 2016

Watch Executive Director Rick Prommel and volunteer Janelle Bell in their interview with Bill LuMaye on MyRDC28 and  The CW22.

Executive Director Rick Prommel explains Neurofibromatosis to host Bill LuMaye

Volunteer Janelle Bell and Executive Director Rick Prommel discuss the NF Tumor Foundation and the importance of increased awareness.

Volunteer Janelle Bell shares her experiences living with Neurofibromatosis with host Bill LuMaye.